Fierce ghost in the machine
Chief Message Officer. Content maven. E-patient. Speaker. Rabble-rouser. Redhead. Author of "Cancer for Christmas: Making the Most of a Daunting Gift". #occupyhealthcare #s4pm
Nothing like a cancer journey to put one in the way of having a PhD in health literacy. Although, since I advocated for and then managed my 'rents care thru end of life before my cancer adventure, I already had at least a Master's in health literacy prior to my trip thru the health care car wash.
Why isn't "how your body works"-level science curricula on the syllabi of every single classroom, starting in pre-K? If kids are learning sentence structure at 4YO, why not the basics of human health? Like, say, what a common blood test result means? Really. I'm serious. Why not?
3 days, 9 hours ago on Health literacy: Once we get our data, will we know what to do with it?
High revenue + low transparency = zero trust. Simple math, really. Finance, healthcare, and oil are notoriously high-revenue, low-transparency industries, so not terribly surprising that the public sees them as regulatory targets.
Here's an idea, for all of them: be more open. Open science, open business models, open books. Open hearts? Maybe that would be an inch too far, but the 1st three would put each of these industries closer to the hearts (and minds) of the consumers that form their revenue base ...
2 months, 2 weeks ago on
Harris Interactive: Harris Polls > Americans Less Likely to Say 18 of 19 Industries are Honest and Trustworthy This Year
You only get what you want by (a) IDing it and (b) working on laying your hands/mind/whatever on it. As the old bromide goes, "wishing doesn't make it so."
We are our own Sanity Clause. Grant your own wishes, bitches.
2 months, 4 weeks ago on The Bitch Slap: Fuck Santa
@Erika Napoletano Doll-baby, we are sisters - well beyond the red-hair thing. On to the weird narwhal identification project!
3 months ago on The Bitch Slap: The Myth of the “Grown-Ass Man” and Other Dating Fallacies
New favorite phrase: "fall in weird with" - 'cause that IS the only way to ID a partner in crime, innit? I mean, it's nice to have a date, but I'd really rather have someone who might possibly be able to take me as I am, so I can return the favor. Dating sucks ass. Finding another narwhal (yep, totally outing myself there)? Now THAT'S progress toward happy =)
This is SUCH an important topic - one I'm delighted to see these two guys talking about. There is a perceived tension between the two, but I don't see that playing out as anything but ultimate synergy. Population health trends/evidence will deliver personalized medicine insights, personalized medicine will reveal population health insights/ trends. Lather, rinse, repeat.
3 months, 1 week ago on Is healthcare facing a battle of population health vs personalized medicine?
Wow - that's some powerful mojo.
I've lived a "fail forward daily" mantra myself for a while now, since who really has a choice to do otherwise, if we want to live a fully-authentic, awake life, right? I salute your ability to stop, drop, and roll away from your barriers to connection with yourself and your world.
Methinks you're some kinda powerful when it comes to helping your coaching clients access their own authentic awesome =)
3 months, 1 week ago on Guest Post: Failure Turns Me On (meet Mike Hrostoski)
Hey, you'll be living in a 2BR condo, so you won't have to get a snow-blower, right? WIN. Other than that ... Chicago is WONDERFUL. Snowing, blazing hot, windy as hell? Whatever, it's WONDERFUL. I grew up moving all the time (military brat) and miss that sense of "new adventures!" Go have some. Tell us 'bout 'em. You're a "new adventure" expert =)
6 months ago on The Bitch Slap: The Part Where You Shit in Someone Else’s Cheerios
@belllindsay @ginidietrich I started my TV career as a field recordist - been there, done EXACTLY that. Hidden camera/mic stuff, too.
7 months, 1 week ago on There is No Such Thing as Off-the-Record
@ginidietrich not entirely true - granted, the big players will be more tuned in to off the cuff comments, but any real reporter will hear bells when someone says something like your guy did.
I saw the end coming, and it still felt like a punch in the gut. That's something so very Sally-Field-you-LIKE-me! - to have a long day in conversation about a topic you care about, only to shoot yourself in the head, figuratively speaking, at the very last moment. As a former net news engineer and then field producer, I saw this live more than once. And it's a little heartbreaking, even when the subject is a complete jerk.
@Erika Napoletano You've never sunk into the sinkhole as far as I can tell. Whether peeps agree with you or not ... you make 'em THINK, which is both a gift and a challenge. Keep on keepin' on, sister. You DO make a difference =)
7 months, 3 weeks ago on On Being White, Female, and Privileged
Hear you roar, grrlfren!! Every single decision we make in life can have an impact - good or not-so - on others. Living intentionally, or at least AWAKE, is kinda a requirement, right? However, given all the shiny objects and noise that mark a First World life ... how's a person of privilege to know when to drop the iPhone and actually talk to the human being next to them?
I'm grateful for a childhood spent on the move, and an adulthood spent mostly in the front row of the first draft of history (the news business, before it became the infotainment sinkhole of stupid). What gives me hope is the teens, 20s, and 30-somethings I spend a lot of time with who are connected, tech-savvy ... and have souls. 'Cause my bunch has turned into a heaving scrum of whining, mean-spirited fuckwits.
@Erika Napoletano @MightyCaseyMedia You do realize that there is now a VERY HIGH RISK of Redhead Funny Bitches: The Tour ... Your post put me in the way of remembering my 1st bit, written [redacted] years ago. I revisited it on my blog last December: http://mightycasey.com/that-f-ing-tree/ [ermegerd. that FUCKING tree.]
8 months ago on Funny Things or Leaving Where You Love for What You Love
<things> Oy, do I need an editor ...
Shit HOWDY, grrlfren - how have you AVOIDED comedy writing for so fucking long? On of the thinks I'm proudest of is that the Education thing in my LinkedIn profile says "American Comedy Institute" - 'cause that shit's actual knowledge, not box-checking attached to a Stafford loan.
Go get well-blown in the Windy City, darlin' - and know that only the few, the proud, the REDHEADS can really rock the mic, comedy or keynote. Best of the best? BOTH. 'Cause funny is what makes keynotes meaningful/memorable.
Delighted to see that Dennis is telling his story as a clarion call to letting patients help. And you can NOT be surprised that the AHA doesn't "see" patients, at least not as part of the team. Patients aren't the customer in the eyes of the AHA, we're the product. So, sadly, are doctors. Still. The hospital-industrial complex sees only payers as partners ...
8 months, 3 weeks ago on “Patients are an unused part of the health care team” – Dennis Quaid – Chasing Zero : Discovery Channel
ohmiGAWD I think I hurt myself. GOAT DAFT PUNK DANCING. ohmiGAWD.
9 months, 1 week ago on Gin and Topics: Dancing, Rapping, and Prancing
@DallasK Gee, dude - troll much?
1 year ago on Women’s Equality: It Starts with Us or it Stays an Illusion
Perception becomes reality. That starts between one's own ears - Danica Patrick can be forgiven (somewhat) for trading on her looks, given that's the currency that women have been taught to use first for millennia now. I think @Erika Napoletano and @ginidietrich are correct in observing that Danica's made her own brand-bed based on "expert advice" from those who see her core audience as NASCAR nerds.
However, as something of a female gear-head (lived alone on a sailboat for 12 years, and have a tool-set that would make Tim Allen jealous), I've never been a big fan of Danica's, largely because she's playing the "I got tits!" card. Both Lynn St. James and Shirley Muldowney own those appurtenances, too, but neither of them played that card. Without their track-blazing work, Danica'd be stuck in a permanent pit-stop.
Madeline Albright said, “There is a special place in hell for women who don't help other women." That includes not falling for the bullshit, and not buying into stereotyped brand messages. I still have one outstanding bit of business with GoDaddy, which will be terminated within the next 30 days. We owe it to our daughters, and our sons, to put our money where our mouths - and our beliefs - are. Hypocrisy ain't purdy, nor has it ever been.